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Heading to the President’s Desk: ACE Kids Act

Jaime Herrera Beutler’s bill to help low-income, medically-complex kids passes U.S. Senate, heads to president for signature

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Washington, D.C., April 3, 2019 | comments
U.S. Representative Jaime Herrera Beutler’s bipartisan Advancing Care for Exceptional (ACE) Kids Act is heading to the president’s desk for his signature into law. Her bill, which was included in a broader Medicaid improvement package, was approved by the U.S. Senate yesterday. ACE Kids Act helps improve the coordination of and access to high quality care to ensure optimal outcomes for children with complex medical conditions on Medicaid.
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U.S. Representative Jaime Herrera Beutler’s bipartisan Advancing Care for Exceptional (ACE) Kids Act is heading to the president’s desk for his signature into law. Her bill, which was included in a broader Medicaid improvement package, was approved by the U.S. Senate yesterday. ACE Kids Act helps improve the coordination of and access to high quality care to ensure optimal outcomes for children with complex medical conditions on Medicaid.

Herrera Beutler has been championing this bipartisan legislation since 2014. WATCH her speak on behalf of her bill in December.

“I’ve sat bedside to bedside with many a family as they face the reality of having a sick kid, and have also hit hard times economically. Every family should be able to pursue the best doctors and facilities for their kids, regardless of their zip code or the scope of their child’s medical needs. Too often, kids get overlooked in our health care system so passage of this bipartisan bill through Congress is a critical step forward in protecting some of the most vulnerable members of our population,” Herrera Beutler said.

“We at Seattle Children’s are very pleased that the ACE Kids Act has passed. Seattle Children’s serves many children, including those living in rural communities, whose highly specialized medical needs require them to cross state lines for care. The ACE Kids Act will improve access to the full range of pediatric providers, from primary care to specialized providers like Seattle Children’s, while at the same time providing additional Medicaid data to ensure care is standardized, more reliable, and safer. This will result in a better system for our nation’s children and their families. We thank and congratulate Congresswoman Jaime Herrera Beutler for her strong leadership in sponsoring this legislation and seeing it through to successful passage,” Dr. Jeff Sperring, CEO of Seattle Children’s Hospital, said.
 

Medically-complex kids on Medicaid:

·         One in 25 children in the U.S. is “medically complex” with diagnoses like cancer, congenital heart disease, Down syndrome, or others that require consistent care and medical expertise. Of the several million medically-complex children, roughly two million rely on Medicaid. Children who have complex medical conditions represent a small percentage of kids in Medicaid, but account for a large portion of the costs.

·         Most children with complex medical conditions receive care from multiple specialized pediatric providers who often are located at different clinics and hospitals, including in different states. The ACE Kids Act will encourage the creation of more health homes for these children and their families that better coordinate care, save precious time, money and lives. Outside studies have found that, through care coordination, the ACE Kids Act will save families and taxpayer money through a less fragmented and burdensome system of care for children and families.

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